Episode 82: AUTO + Autoinflammatory Arthritis: Diagnosis, Please!

Join us for this episode where the co-hosts, Tiffany and Leila, share their personal journeys of being diagnosed with AiArthritis diseases. Tune in to hear how their journey of being diagnosed and misdiagnosed and the lessons they learned throughout the process. 

 

We also delve into the exciting new resource tool being developed by AiArthritis, which helps patients navigate the process of seeking a diagnosis, understanding symptoms, and asking the right questions of their doctors. Plus, we invite other patients to share their stories and provide insights for those just starting their Auto + inflammatory arthritis journey. Join us for an informative and uplifting conversation on Auto + inflammatory arthritis diseases. 

 

If you would like to share your story, insights or recommendations to help improve our new tool, please fill out the Google form on www.aiarthritis.org/diseases

Episode Highlights: 

• Leila and Tiffany share their different stories of being diagnosed with their diseases 
• Importance of resources for auto + arthritis diseases for patients to compare their symptoms to and hear other patients stories
• How to best be supported on the journey of discovering what your disease may be when you show first signs of symptoms 
• What questions are recommended to ask your doctor when searching for a diagnosis
• List of different symptoms you may experience with auto or arthritis diseases
• Best advice for patients seeking AiArthritis diagnosis 

Links Mentioned: 

 

Come share your stories for the new AiArthritis Ebook : The Good, The Bad & The Ugly : AiArthritis.org/gbu

 

• Tiffany is the CEO at International Foundation for AiArthritis and uses her professional expertise in mind-mapping and problem solving to help others, like her, who live with AiArthritis diseases work in unison to identify and solve unresolved community issues.

 

Connect with Tiffany:

• Facebook: @TiffanyAiArthritis
• Twitter: @TiffWRobertson
• LinkedIn: @TiffanyWestrichRobertson

 

• Leila is the Health Education and Engagement Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Syndrome. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @LupusLifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.

 

Connect with Leila:

    Instagram: @lupuslifestyle.lei

     LinkedIn: www.linkedin.com/in/leila-lagandaon

      Facebook: @leilaaiarthritis

     YouTube: LupusLifestyle.Lei

     TikTok: @lupuslifestyle.lei

 

 

Donate to Support the Show: https://www.aiarthritis.org/donate 

 

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AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org).  Be sure to check out our top-rated show on Feedspot!