Episode 89: Surgery with an AiArthritis Disease

Tune in to the latest episode of AiArthritis Voices 360 Talk Show, where your co-hosts Leila, Deb, and Kerry candidly share their personal journeys of undergoing surgery while living with AiArthritis diseases. In this episode, the co-hosts delve into their surgical experiences, including the pivotal surgeries they've had due to their conditions. From Deb's journey triggered by a bunion removal to Kerry's hip replacement due to the complex interplay of autoimmune conditions or Leila’s gastric sleeve surgery due to weight gain from treatments, the trio reflects on the unexpected intersections of surgeries and AiArthritis diseases. 

 

They discuss the preparations they navigated before surgery, the challenges they faced with doctor clearances and insurance, and provide valuable insights for fellow AiArthritis patients, including the crucial questions to ask healthcare professionals. Listen in to gain a unique perspective on surgeries with AiArthritis diseases and discover firsthand the resilience and strength that arise from these experiences.

 

Share your questions here: info@aiarthritis.org

Episode Highlights: 

• What surgeries each co-host has had and whether they are related to their AiArthritis disease
• What preparation is required before surgeries with an AiArthritis disease
• What questions patients should ask their doctors to prepare for surgery
• Co-hosts share their recovery journey

Meet Our Co-Hosts:

 

• Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus Nephritis and Sjögren’s Syndrome. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. Leila is on social media as @LupusLifestyle.Lei sharing bits and pieces about her life with lupus and connecting with others. Connect with her on Instagram or TikTok.

 

Connect with Leila:

    Instagram: @lupuslifestyle.lei

     LinkedIn: www.linkedin.com/in/leila-lagandaon

      Facebook: @leilaaiarthritis

     TikTok: @lupuslifestyle.lei

 

• Deb Constien is a medically retired Registered Dietitian and a Representative for the AiArthritis with Rheumatoid Arthritis. Deb is also on the Advisory Council for WREN- Wisconsin Research Education Network and a Patient Family Advisor- PFA on an International PCORI research study for ACP- Advanced Care Planning.

 

Connect with Deb:

 

• Facebook: @deb.majcherconstien
• Instagram: @debconstien
• Twitter:  @debconstien

 

• Kerry was eventually diagnosed with Fibromyalgia, Sarcoidosis, Small Fiber Neuropathy, Rheumatoid Arthritis, and Sjögren's Syndrome (to name a few). Kerry is a volunteer at New York State Advocacy Chair, Ambassador with Arthritis Foundation, and Patient Ambassador/Peer Mentor with Foundation for Sarcoidosis Research. Kerry does all she can to support the arthritis, sarcoidosis, chronic illness, and rare disease communities

 

Connect with Kerry:

    Instagram: @buttahflyk 

    Twitter: @buttahflyk 

    Facebook: @floatlikeabuttahfly

 

Donate to Support the Show: https://www.aiarthritis.org/donate 

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AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org).  Be sure to check out our top-rated show on Feedspot!