Ep 110 - From Caregiver to Changemaker: Revolutionizing Care for AiArthritis Diseases/IMIDs

Managing AiArthritis diseases are challenging but what if the entire model of care could change for the better? In this episode, Leila is joined by Dr. Jin Lee, co-founder and CEO of IMIDeology, a virtual and in-person clinic dedicated to diagnosing and treating immune-mediated inflammatory diseases (IMIDs) like spondyloarthritis, lupus, Crohn’s, and more.

Dr. Lee shares her journey from caregiver to changemaker and how IMIDeology is improving access, diagnosis, and treatment through an innovative, patient-first approach. The conversation also explores chronic pain education and why it’s so often misunderstood in IMIDs. Leila and Dr. Jin Lee share how to describe IMIDs more effectively and how patients can better advocate for pain support.

Plus, hear about IMIDeology’s pain management study and upcoming Autoimmune Patient Summit, designed to educate and empower the IMID community. If you’ve ever felt unheard or overlooked in your care journey, this episode offers fresh ideas, support, and a hopeful vision for the future of IMID treatment.

 

Donate to Support the Show: www.aiarthritis.org/donate

 

Episode Highlights:

• Learn how Dr. Jin Lee’s caregiver journey inspired the founding of IMIDeology.
• Understand what IMIDs are and why a multidisciplinary approach to care matters.
• Discover how virtual rheumatology clinics are changing access to diagnosis and treatment.
• Get practical advice on describing and managing chronic pain with your care team.
• Hear how you can participate in IMIDeology’s pain management study and upcoming Autoimmune Patient Summit.

 

Links & Resources

• IMIDeology Website: https://www.imideology.com/
• Autoimmune Patient Summit: https://www.imideology.com/event-details/autoimmune-patient-summit
• Join the Join Management Study: https://www.imideology.com/pilotstudy
• Go With Us! To EULAR June 11-14 https://www.aiarthritis.org/conferences
• Mystery Patient Guide: www.aiarthritis.org/undiagnosed
• Volunteer with AiArthritis : https://bit.ly/AiArthritisVolunteerApp

 

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Connect with our Cohost:

Leila is the Health Education Manager at the International Foundation for AiArthritis. She is a person living with Lupus and Sjögren’s disease. She is passionate about inclusion and diversity in health education and meeting individuals where they are at in order to learn in a way that resonates with them. 

Connect with Leila:

Tiktok: @Lupuslifestyle.lei

 

Dr. Jin Lee is the Co-Founder and CEO of IMIDeology, virtual and in-person clinical network dedicated to supporting patients with chronic inflammation and autoimmune conditions such as IBD & lupus. With firsthand experience navigating the healthcare system as both a patient and caregiver, Dr. Lee is a passionate advocate for those living with immune-mediated inflammatory diseases (IMIDs). Dr. Lee has worked across the healthcare ecosystem in pharma, payer, and provider innovation, leading efforts in product development and commercialization. She also invests in the future of healthcare as a limited partner in three angel funds and serves on multiple startup and nonprofit boards, including past roles with the American Heart Association and the Healthcare Businesswomen’s Association. Dr. Lee is a Presidential Leadership Scholar, selected by four U.S. Presidential Centers, and was honored as one of the “100 most impactful women and allies shaping the future of biopharma, healthcare, and life sciences” by Biopharma Leaders of Color (BLOC).

Connect with Dr. Jin Lee:

Website(s): https://www.imideology.com/

• Facebook: https://www.facebook.com/IMIDeology
• Instagram: https://www.instagram.com/imideology1/
• LinkedIn: https://www.linkedin.com/company/imideology/
• YouTube: https://www.youtube.com/@imideology
• TikTok: https://www.tiktok.com/@imideology