Episode 69: Changing the World from Your Sofa! Meet the Volunteers

In this episode, Tiffany Westrich-Robertson (AiArthritis CEO) and Katie Simons (Senior Programs & Communications Manager) talk about the heart and soul of our organization - the volunteers! Meet five volunteers from around the world - Deb, Katie, and Leslie from the United States, Pooja from India, and Judy from Australia - hear from them just how much they've accomplished by joining our team and the impact they've helped us achieve!  Learn more about many of our programs and ways YOU can get involved in 2022! Patient voices and all other stakeholders welcome!

 

Learn more about the following programs mentioned in the episode:

• AiArthritis Voices
• AiArthritis Voices 360
• RheumyRounds
• A Community Team (ACT) - first immunology Innovation in Research winner, Celgene 2015
• A Community Team (ACT) II - utilizing data from atypical patients to justify when it's time to ensure treatment decisions are made by their doctors, who are ethically obligated to treat to the individual needs of patients. 
• World AiArthritis Day
• Still's Disease Awareness Day
• Preparing Patients for Precision Medicine
• COVID19 - Actemra Shortage
• COVID19- Shared Decision Making
• Go with Us to Conferences
• NEW IN 2022 - Advocacy/Public Policy Creative Patient-Led Learning!

Sign up to volunteer at aiarthritis.org/volunteer !

 

Patient Voices and All Other Stakeholders - Join our AiArthritis Voices Program and Connect to Opportunities to Have Your Voice Counted!

 

If you are a patient, a parent of a juvenile patient, or any other stakeholder (doctor, nurse, researcher, industry representative, or other health services person) - are you ready to join the conversation? It's your turn to pull up a seat. Join our new AiArthritis Voices program, where people living with AiArthritis diseases and other stakeholders who we need 'at the table' to solve problems that impact education, advocacy, and research sign up to have a voice in our initiatives. By signing up, you’ll get notified of opportunities to be more involved with this show - including submitting post-episode comments and gaining insider information on future show topics. Patients and all other stakeholders are encouraged to join so we can match you with opportunities to pull up a seat and TOGETHER - as equals - solve the problems of today and tomorrow.

JOIN TODAY!

 

AiArthritis Voices 360 is produced by the International Foundation for Autoimmune and Autoinflammatory Arthritis. Visit us on the web at www.aiarthritis.org/talkshow. Find us on Twitter, Instagram, TikTok, or Facebook (@IFAiArthritis) or email us (podcast@aiarthritis.org).  Be sure to check out our top-rated show on Feedspot! 

 

 

Episode 69: Volunteering with AiArthritis

00:52 - Tiffany welcomes listeners.

01:04 - Tiffany is the CEO of AiArthritis and a patient living with non-radiographic axial spondyloarthritis.

1:11 - Tiffany is joined today by Katie, the Senior Programs Communications Manager at AiArthritis and a patient living with rheumatoid arthritis.

5:50 - Tiffany shares the origin story of AiArthritis as an organization.

14:20 - Tiffany and Katie discuss the role of volunteers in the AiArthritis organization.

16:41 - Judy - a volunteer from Australia - gives her volunteer testimony.

19:43 - AiArthritis strives to provide accurate information and a community space for aiarthritis patients.

22:42 - AiArthritis has developed a free online platform called AiArthritis Voices for all stakeholders to connect and find volunteer opportunities.

25:15 - AiArthritis provides information to patients about new treatment options.

25:49 - Deb Constein - a volunteer from Madison, WI and recurring co-host - gives her volunteer testimony.

32:17 - If we are working on something, volunteers have the opportunity to work on it!

35:49 - Patrice - a volunteer from California and recurring cohost - gives her volunteer testimony.

36:33 - Patrice is a great example of how many initiatives you can be involved in even as a new volunteer.

41:59 - Leslie - a volunteer from Michigan - gives her volunteer testimony.

45:38 - Pooja - a volunteer from India and recurring co-host - gives her volunteer testimony.

54:16 - If you are interested in advocacy, visit aiarthritis.org/advocacy

54:24 - Or visit aiarthritis.org/volunteer to learn about many opportunities for getting involved!